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Author Topic: feeling a little lost  (Read 499 times)
caitlins mum
kokiri
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« on: September 26, 2010, 06:22:54 AM »

hi here i am at half four in the morning after sitting up all night again trying to make sense of a situation. My brother was diagnosed with aspergers at the age of 7 and is now in comp school doing extremley well. I have read countless amounts on aspergers and lived with the ups and downs it can bring. Im pretty sure my daughter is showing clear traites but i am finding it very hard to be taken seriously by her school. My mum is adament she has aspergers and the more i actually sit and think about her quirks and behaviour the more it makes sense. My daughters closest friend in school strangley was diagnosed last year and they have been inseperable from the day she started. now i have become good friends with the family and his mum says she can see the signs in caitlin. i really dont know how to persue getting her diagnosed if the school dont agree. We went to see a doctor for an initial report who said she was displaying some sort of learning disability but she discounted aspergers as soon as i mentioned it and her only questions to my daughter were do you have friends in school and do you tell mum if your baby sister cries ? I can see why those questions were asked but dont think she knew enough to discount what i was trying to say any thoughts on what to do are much appreciated i feel lost and really just want the best start for my girl   Confused
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« Reply #1 on: September 26, 2010, 10:31:43 AM »

hi here i am at half four in the morning after sitting up all night again trying to make sense of a situation. My brother was diagnosed with aspergers at the age of 7 and is now in comp school doing extremley well. I have read countless amounts on aspergers and lived with the ups and downs it can bring. Im pretty sure my daughter is showing clear traites but i am finding it very hard to be taken seriously by her school. My mum is adament she has aspergers and the more i actually sit and think about her quirks and behaviour the more it makes sense. My daughters closest friend in school strangley was diagnosed last year and they have been inseperable from the day she started. now i have become good friends with the family and his mum says she can see the signs in caitlin. i really dont know how to persue getting her diagnosed if the school dont agree. We went to see a doctor for an initial report who said she was displaying some sort of learning disability but she discounted aspergers as soon as i mentioned it and her only questions to my daughter were do you have friends in school and do you tell mum if your baby sister cries ? I can see why those questions were asked but dont think she knew enough to discount what i was trying to say any thoughts on what to do are much appreciated i feel lost and really just want the best start for my girl   Confused

Those questions are stupid.. they have nothing to do with aspergers. Have you thought about looking for a diagnosis elsewhere?
Professionals don't seem to get that people with aspergers can actually have friends.. at that age I only had one but thats still a friend.

How do you think a diagnosis will benefit? I didn't get diagnosed until it became a problem people could ignore, but is there a reason you feel an official diagnosis will help her?

Hows your daughter coping with school? Does she seem happy, how are her grades?
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« Reply #2 on: September 26, 2010, 12:00:29 PM »

hi here i am at half four in the morning after sitting up all night again trying to make sense of a situation...

Your first port of call needs to be your family doctor. Make a list of Caitlins traits and take them with you. Explain the situation about the history of Aspergers in the family and explain your concerns. It shouldn't be a problem for your doctor to refer caitlin for a formal diagnosis. At seven years old Caitlin is at the ideal age to be diagnosed, as traits will be readily apparent to a trained eye and there is a lot that can be done at that age to help her.

It would be helpful if we new which country you are from and that way we may be able to give you a little more specific help on the process of getting help at school and getting formal diagnosis. Feel free to send me a private message with more details and we will see what we can do to help.

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« Reply #3 on: September 26, 2010, 03:53:44 PM »

I still think the questions the professional asked your daughter are stupid.. you can't diagnose based on those questions.

Good luck, and please ask if you need anything from us Smiley
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caitlins mum
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« Reply #4 on: September 27, 2010, 12:32:56 PM »

thankyou all for the advice i have changed doctors surgery to one with a paediatrician i have started making a diary so we can track her moods better to see if theres anything that triggers her "moments" im going to take it with me to show the school and the doctor because were in the uk i cant have her privatley diagnosed as it dosent count as an nhs diagnosis she need help at school and that is the only reason im pushing for someone to see her. her reading level is age 5 and writing is getting there but she has to really concentrate espcially if theres more than one line on a page. she struggles to focus without one to one to keep her on track and i really dont want her to fall behind anymore. she tries so hard and i just think if we can get her help in school she will have a better life altogether.
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« Reply #5 on: September 27, 2010, 01:45:46 PM »

Be prepared for a wait, as the NHS is very slow at the moment with ASD diagnosis, so it may take some time. I will send you an email with a few links in you might find useful.
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Zen
caitlins mum
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« Reply #6 on: September 28, 2010, 04:04:42 PM »

thankyou my email was hacked this morning so if you sent it its probably gone would be greatfull if you wouldnt mind sending me the info again
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« Reply #7 on: September 28, 2010, 07:01:40 PM »

Will do Smiley
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Zen
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